Well, I feel like I have put off writing about Brent as long
as I could. We have gotten a lot of
phone calls and cards recently, and also a lot of questions. I know people are wanting more information
about Brent’s status, so it seems it will be easier to write it here so
everyone can get information if they want it!
Back in April/May, Brent started having some numbness from his
waistline down. He went to the
chiropractor and she did an x-ray, but said everything seemed fine and he
should try some therapy for a while. For
some reason, that just didn’t sit right with us, and we set up an appointment
with an orthopedic surgeon who specialized in the spine. He ordered an MRI right away, then 6 more
MRIs the next day. He then referred us
on to a neurosurgeon who might be able to help us more. It was explained to us that Brent has a benign
tumor growing inside his spinal cord. We
have seen neurosurgeons here in Greensboro, at Wake Forest Baptist, and at
Duke (and have realized how amazingly lucky we are to live in NC with such good hospitals!). They have all said that surgery is imminent, but it is kind of up to us when we want to go ahead with it. They will have to cut through the healthy
part (sensory nerves) of his cord in order to get to the tumor, and will then
get as much of the tumor that is possible and safe. They say they use a monitor
that will sound an alarm if they start to damage motor nerves, and will stop
the surgery if that starts to happen.
This is good because they try to decrease motor damage as much as
possible, but it also means that they might not be able to get it all out, and
it might come back in the future. There
are obviously a lot of scary side effects of the procedure, but the doctors
have said he should expect increased numbness and probably chronic pain, at
best. If we leave it, he could eventually become paralyzed.
We think surgery will be the route Brent will need to take, but
have also started exploring other routes—things like demyelinating disease (MS
and Devic’s disease), even though the surgeons are "99.9% sure it's a tumor". The neurologist
ordered a visual evoked potential, some blood work, and yet another MRI (of the
brain this time). Brent is having the
MRI this Wednesday and we will hopefully know more about the neurologist’s
opinions soon.
Why am I telling this now? We had lunch with some great
friends the other day, and they said to us “Seriously, tell us if you need
anything. It’s easy to be too proud to
ask for help.” They were right. We have kept this from a lot of people,
mainly because we are still trying to figure everything out, but also because
we don’t want people to “freak out” on our behalf. But, we are now asking for everyone’s help.
WE NEED YOUR PRAYERS. Not just for
Brent’s health, but also that we will know what path to take. That we will be confident in the decisions we
make. That the doctors we encounter will
have the knowledge we need. That we may
feel a little bit of peace in a whole lot of overwhelming circumstances. THANK YOU IN ADVANCE FOR YOUR SINCERE PRAYERS.